Tel: 01344 771961


Email this Group


Visit the Group's Website


DebRA House
13 Wellington Business Park
Dukes Ride
RG45 6LS

    Last Modified: February 24, 2022


    Add to shortlist

    Group aims

    For people whose skin doesn’t work – we do.

    DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had EB – the charity was the world’s first EB patient support group.

    Our vision:

    We have a vision of a world where no one suffers from the painful genetic skin blistering condition, EB.

    Group activities

    DEBRA focuses its work in two areas:

    • We fund pioneering research to find effective treatments and, ultimately, a cure for EB.
    • We provide care and support to improve the quality of life for individuals and families living with EB

    Find out more on our website:


     Get Directions
    Add to shortlist